In hospice: One year later

My mom had her stroke the morning of February 14, 2023. By February 15, it was clear that she would not be recovering, and that hospice would be the best option for her to spend her remaining days. But there was a complication: she had contracted COVID-19, which directly led to her stroke. Only one hospice locally was willing to accept individuals who were COVID-positive. That was the Hospice of the Sacred Heart in Dunmore, PA.

I would have preferred her to spend her final days at home, and I know she would have, too. But her condition, even as she was dying, required care that I wouldn't be able to provide. The Hospice of the Sacred Heart came highly recommended. My brother, sister, and I all agreed it would be the best place for her. Now it was a question of getting her there.

The logistics were...complicated. Even once we secured a COVID-approved room at the hospice, we still had to arrange for transportation. The final decisions were being made late on the afternoon of the 15th. She was being moved from her room in the CCU (or ICU, I forget which) to a sort of holding room in another part of the hospital. We didn't want her to be moved a second time that same day after she was just settling into the new room, but somehow that got misconstrued as not wanting her to be transported at all. She wound up spending the night of the 15th at the hospital. Much of the 16th was spent disentangling the confusion from the day before and waiting for transportation. I stayed in her room late into evening, well after the hospital had closed to visitors, and finally had to go home. Transport showed up an hour or two later. My brother was alerted, and he traveled to the hospice to supervise her check-in.

If you have a choice as to where you can spend your final days, the Hospice of the Sacred Heart is highly recommended. It is a calm, gentle place. It is very generous and welcoming to family members. In the week-plus that my mom was there, I frequently spent more than eighteen hours there in a given day. Food was far from my mind those days, but the hospice provided coffee and snacks and made-to-order meals. My mom's room was spacious and accommodating, where two of us could be there with her at the same time without tripping over each other. I often napped in a chair next to her, much like a cat in a short story I had written a decade before.

My first time at the hospice was on Friday the 17th. I decorated the room with artificial flower arrangements that she would never see, arrangements that I had meant to use to welcome her home. I brought up the Valentine's Day arrangement I had placed in her rehab room two days before her stroke. I brought up her favorite blanket and covered her with it. All these things were meant to send a message: This person is loved. Treat her well.

The hospice would become my second home until my mom's death on the 24th.